kestrell: (Default)
Kes: Ironically, I spent this morning talking to a healthcare consumer group about failures in healthcare, and one of the things I mentioned is that actually, yes, health insurance groups do consider smart home tech, including something as inexpensive as an Alexa, a luxury, and are always turning down requests for these technologies, although the companies themselves do not seem to employ assistive technology professionals who are qualified to conduct evaluations of consumers's needs and make appropriate recommendations.

How Smart Home Tech Is Making Tasks Easier, Improving Accessibility
November 17, 2020
https://www.boia.org/blog/how-smart-home-tech-is-making-tasks-easier-improving-accessibility

As the Internet of Things (IoT) continues to grow, smart devices keep getting smarter. Consumers can now find affordably priced smart speakers, smart locks, video doorbells, and even smart window coverings — and for the
61 million American adults living with disabilities,
https://www.cdc.gov/ncbddd/disabilityandhealth/infographic-disability-impacts-all.html
smart home devices aren’t mere novelties. IoT tech has significantly improved accessibility by opening up new ways to interact with devices, often at a fraction of the cost of traditional assistive technologies.

And because smart home devices can be programmed to interact and change based on conditions, users have considerable control over the way that they function. Exploring a few real-world applications of smart home technology provides some insight into the way that real people live — and how new technologies can promote accessibility.

Some smart devices tend to follow the principles of accessibility by default
Smart gadgets cut down on labor and make many tasks easier, and because the devices don’t rely on a single set of controls, they can remove some challenges for people with disabilities. People with vision disabilities can use voice commands, while people with speech disabilities can input commands via smartphones, tablets, or other devices
(Google’s Assistant app,
https://www.androidcentral.com/google-assistant-finally-same-phones-and-google-home

...for instance, now provides the same functionality through text as the Google Home, the company’s voice assistant technology).

In the smart home ecosystem, people have options. Tasks can be automated, controlled remotely, or scheduled to the user’s preferences, which opens up thousands of possible accommodations.

That’s important because people don’t follow a script. For a smart home device to be truly "smart," it needs to be adaptive, capable of changing to meet the needs of the consumer. By virtue of their design, smart home devices fulfill many of the
goals of accessibility
https://www.boia.org/blog/what-are-the-four-major-categories-of-accessibility
— they’re operable, adaptive to different types of users, perceivable in their functions, and robust enough to adapt to future technologies.
kestrell: (Default)
Yesterday during a meeting the question came up of how to find out which urgent care options are near you, as an alternative to using the E/R, which my insurance company is making an active effort to discourage.

Aside from my pointing out various reasons why this is a much more complex issue than the insurance company thought, it occurred to me to wonder how well Alexa and Siri could provide answers to the question of where I could go for urgent care.

Alexa gave three answers, all more than a mile away, and prompted me to respond whether I wanted more information about any of them.

Siri, however, really blew Alexa out of the water on this one: Siri gave three options, and two were much closer, including the Codman Square Health Clinic which is only a few blocks away, and my actual PCP. Siri's farthest away option was the same as Alexa's closest option.

Siri also prompted me to respond whether I wanted to call any of these options.

This got me thinking about my default search habits, and how I should be experimenting more. Also, I want to investigate what Siri is using for searches.

Well, lately my Internet wishes keep coming true, so this morning there was an email update from MakeUseOf listing 12 alternatives to Google. The second link with a similar title showed up in my search engine (still Google at this point) while I was trying to find out the direct link to the MakeUseOf article.

12 Search Engines that Find What Google Can't from MakeUseOf
https://www.makeuseof.com/tag/13-alternative-search-engines-that-find-what-google-cant/

12 Google Alternatives: Best Search Engines to Use in 2020
https://fossbytes.com/google-alternative-best-search-engine/
kestrell: (Default)
From a known contact at Mass Health:

We want to share some information about the Governor's announcement yesterday regarding pop-up testing sites for those who have participated in large gatherings and protests in recent weeks. Free testing will be available on Wednesday, June 17th and Thursday, June 18th at over 50 sites across the state for those who have participated in these gatherings.

The Administration is urging anyone who attended a large gathering or protest in recent weeks to get tested for COVID-19 at one of these sites. Test results will be provided to each participant confidentially, and participants are encouraged to share their results with their health care providers.

You can find a testing site near you at http://www.mass.gov/gettested.

Please share this information with any family, friends, or loved ones that have participated in large gatherings, and encourage them to get tested.
kestrell: (Default)
Alexx got home around dinnertime last night. M. fed him some bacon--not an evil carb--and he went to bed, hopefully to get lots of sleep, which did not happen in the hospital.

I am now adamantly opposed tot he way patients are pressured into going to rehab centers. The pressure is couched in terms of recommendation, given promises of additional physical therapy hours (which do not get fulfilled), and assurances that the patient will be delivered home in an ambulance. Be aware: rehab centers offer profit for other companies.

As soon as the patient rejects the rehab center, the hospital can't seem to get rid of him fast enough. The hospital caseworker wouldn't give us any solid date or time for Alexx's release, and about 4 I had resigned myself to the fact that he wasn't going to get released yesterday at all.

Then at 4:30, Alexx called to say that he was being released, but no information on how he was to get home.

It turns out, they wheeled Alexx to the exit in a wheelchair, gave him a voucher for an Uber ride home, and that was it.

Fortunately, we have housemates with a car who came through and drove Alexx home.

But he *is* home so, hopefully, now he can get lots of rest and spoiling and non-carb food (yes, the hospital kept feeding the diabetic high-carb meals and then berating him for his high blood sugar while giving him insulin injections).
kestrell: (Default)
The hospital caseworker gave a hard sell for Alexx going to a rehab center, almost presenting it as the only choice (someone less knowledgeable about healthcare rights might have read it that way), but Alexx was unmistakenly vocal about going home, and I presented all the reasons why he would be better off at home, so the caseworker finally had to back down and admit that visiting nurses and physical therapists could work with him at home. But it was a fight.

The past year of advocating for healthcare rights for PWD really served us well today.

Also, hearing stories of personal experiences from disability rights advocates regarding their treatment in rehab centers persuaded me that few ppl are better off going that route.

But, yeah! Alexx is coming home! No solid details yet--I get the feeling the caseworker has to refill all the paperwork--but he will be delivered by ambulance, hopefully later today.

Also, Alexx is walking by himself, at least the short distance to the bathroom, without a walker and without assistance.
kestrell: (Default)
Yesterday someone from BMC called to ask a bunch of questions about our house and home but, when I asked if Alexx was going to be discharged today, she immediately said this wasn't her case and the caseworker would call me "at some point" to give me details and, of course, I have yet to hear from this person.
Meanwhile, ppl at the hospital have mentioned sending Alexx to a rehab center, but have not confirmed any details.
I have heard about rehab centers from other PWD on the health care advocacy group I am on, and all the stories of personal experiences are negative.
I'm beginning to get the impression that a big reason for the rehab center idea is that I, as Alexx's blind wife, am considered to be incapable of caring adequately for hin.
Have passed through the angry phase to the "you have no idea who you are talking to" phase.
Bottom line: Alexx isn't getting very much sleep, or even rest, with all the hospital noise and disruptions, and when he presses the call button, it isn't always answered. There is no way that he wouldn't be better off at home.
But rehab centers are part of the business model of public health care, rather than visiting nurses and physical rehab ppl who work with ppl recovering at home
This system is broken..
kestrell: (Default)
I feel as if all I post here anymore are complaints, but it is just one of those years. Last week I had a really painful arthritis flare up in my right hip, which is a new thing, and my GP basically said, Let's wait and see if it goes away, despite my trying to explain about how much pain I was in. She recommended taking ibuprofen, because, hey, I never thought of trying that on my own, as it didn't help at all. I've ordered a mattress topper, in hopes that that might at least make it less painful to lie in bed. Also: lavender-infused mattress topper, ooooo.

Anyway, while at the health clinic, I asked for a code so I could log onto the online healthcare Website that allows for tracking appointments and communicating with doctors, only to find out once I tried logging in that it seems to be totally inaccessible. I mean, all I can find for my screen reader to read is the copyright info from the company who made the software--good to know they prioritized the important things.
kestrell: (Default)
It's called Circulation
https://www.circulation.com/
and it claims to work with hospitals and health plans in order to provide transportation specifically tailored to the needs of a patient or PWD.
kestrell: (Default)
This Motley Fool article explains how SS has come to benefit the wealthy far more than the average income retirees it was originally intended for
https://www.fool.com/retirement/2018/10/01/donald-trumps-social-security-benefit-is-probably.aspx

As the article mentions, one reason Trump may be reluctant to release his income tax information is that he may be collecting his not-insubstantial Social Security benefits along with that measley White House paycheck.

But remember, this is the man who claims he is saving Social Security from the Democrats
https://www.usatoday.com/story/opinion/2018/09/19/donald-trump-weakening-social-security-medicare-not-saving-column/1340839002/
kestrell: (Default)
Kes: This focuses on one of the biggest issues in developing apps and programs related to healthcare, and disability for that matter: you need to be aware that the ppl you want to get it to may not have the best technology, and/or you want a technology that can deliver your product across a variety of consumers. This is why I think Alexa has such huge potential for healthcare and services for PWD: an Echo Dot cost about $25, and Alexa can be installed on phone, laptops, PCs, and the fact that all skills go through Amazon gives them a centralized location for discoverability..

https://www.geekwire.com/2019/virtual-reality-helping-babies-breathe-thanks-project-seattle-childrens-oxford/

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