Not quite an Alexx update
Jan. 28th, 2020 09:42 am![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
Yesterday someone from BMC called to ask a bunch of questions about our house and home but, when I asked if Alexx was going to be discharged today, she immediately said this wasn't her case and the caseworker would call me "at some point" to give me details and, of course, I have yet to hear from this person.
Meanwhile, ppl at the hospital have mentioned sending Alexx to a rehab center, but have not confirmed any details.
I have heard about rehab centers from other PWD on the health care advocacy group I am on, and all the stories of personal experiences are negative.
I'm beginning to get the impression that a big reason for the rehab center idea is that I, as Alexx's blind wife, am considered to be incapable of caring adequately for hin.
Have passed through the angry phase to the "you have no idea who you are talking to" phase.
Bottom line: Alexx isn't getting very much sleep, or even rest, with all the hospital noise and disruptions, and when he presses the call button, it isn't always answered. There is no way that he wouldn't be better off at home.
But rehab centers are part of the business model of public health care, rather than visiting nurses and physical rehab ppl who work with ppl recovering at home
This system is broken..
Meanwhile, ppl at the hospital have mentioned sending Alexx to a rehab center, but have not confirmed any details.
I have heard about rehab centers from other PWD on the health care advocacy group I am on, and all the stories of personal experiences are negative.
I'm beginning to get the impression that a big reason for the rehab center idea is that I, as Alexx's blind wife, am considered to be incapable of caring adequately for hin.
Have passed through the angry phase to the "you have no idea who you are talking to" phase.
Bottom line: Alexx isn't getting very much sleep, or even rest, with all the hospital noise and disruptions, and when he presses the call button, it isn't always answered. There is no way that he wouldn't be better off at home.
But rehab centers are part of the business model of public health care, rather than visiting nurses and physical rehab ppl who work with ppl recovering at home
This system is broken..